I wasn't able to visit Dylan for 4 days. I was having some serious Dylan withdrawals!!
He got his new casts on Monday. His feet are already starting to look much better, hopefully he only needs 2 more weeks of casting then a small surgery to release his achilles tendon and two more weeks of casting after that.
He is starting to gain a little more weight since he is now on 86cc every three hours and its being fed gastricly through a nasal tube. They are administering it over an hour and giving him a two hour break. They add some human milk fortifier to fatten up the milk plus we are only giving him my hindmilk (which is the fatty part of my breastmilk).
Yesterday the occupational therapist was able to start some tastes. She pretty much puts some breastmilk on the pacifier to see how well he will suck and swallow. He is doing pretty good but she thinks he still doesn't have a strong gag reflex or the stamina to suck for a extended period of time. Hopefully next week he will be given an opportunity to try. The dr's are trying to convince us to place a g tube but we are not yet ready to make that decision. We think he should at least be given a chance to feed before putting him through a surgery.
Thanks for all your support and prayers. God Bless.